In 2018 two clinical trials will start to test new medicine for its effectiveness in FOP. Please see https://clinicaltrialsregister.eu and https://clinicaltrials.gov. 
The two active clinical trials are:

We enable our patients from The Netherlands and abroad to participate in every clinical trial that will be available now or in the future. We are collaborating with researchers and pharmaceutical companies to make sure that all studies will be accessible for our patients. REGN2477 will start the 16h of April 2019, the MOVE study is expected shortly after.

If you have any questions, please send them to fop.amsterdam@vumc.nl